ALS Ice Bucket Challenge Founders Discuss How it BeganFounders Anthony and Jeanette Senerchia, Pat Quinn, and Pete Frates tell the story of how the #ALSIceBucketChallenge became a global phenomenon. Join us again this August and #EveryAugustUntilACure
Posted by The ALS Association on Thursday, July 23, 2015
The irony in being a blogger is that I was such an emotionally closed young adult. Now that I’m well into adulthood, some would say I won’t STFU.
In the past few weeks, The ALS Ice Bucket Challenge has made me even more verbal. Lucky you!
My father died of ALS in 1997 at the age of 54. Often referred to as Lou Gehrig’s Disease, ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Basically, it’s a death sentence. While many medical professionals call it one of the worst ways to die, ALS traps a person’s mind and soul into a motionless body.
I was only 18 when my dad was handed his fatal diagnosis.
My hopes of moving to Vancouver and attending UBC quickly faded — I knew I had to stay home and help my mom and brother care for my dad. And I did just that for the following 4 years.